Cuban boy named Emanuel Sayes most of his life suffering from a rare disease — prostaticescoy fibrous dysplasia. Instead of bones from 14-year-old fibrous tissue. Because of this, any movement can cause fractures and deformity of the feet, hands, skull. But the boy did not stop to live a normal child life. He, like all children attended school, made friends. The only feature of it was that Emanuel was on crutches.
The deterioration of the disease occurred three years ago. It all started with the fact that on the nose Saese there was a small pimple. Over time this place has evolved a benign tumor. Now it is closed completely all the boy’s face. Breathe Emanuel can only mouth. But for him it is a hard task on his windpipe crushes the tumor. Food he takes with difficulty. To see a teenager almost ceased. But the most dangerous, is that the tumor is threatening to break the boy’s fragile neck vertebrae. Its weight is about four pounds.
Local doctors refused to undertake the operation. According to them, removal of the tumor can only exacerbate an already difficult situation Emanuel. Another opinion was Dr. Robert Marx. He directs the Department of oral and maxillofacial surgery at the University of Miami. The doctor has experience in the removal of dangerous tumors. Two months ago he offered his services to the parents of Emanuel. Spouses SAEs gladly agreed. Getting a medical visa they brought their son to Miami.
The first surgery Dr. Marx is planning to hold in January. It will be held at the children’s hospital of the University of Miami. According to the calculations of head of the Department of oral and maxillofacial surgery, this procedure can last from 10 to 14 hours. If successful, after a few months, Emanuel will have more time to lie on the operating table. He was going to restore cheekbones, top jaw and nose. Between the operations the boy will be in rehab.
