Immigrante from Guatemala, who 16 years ago came to the US to get cured from a rare disease, could die if she is deported

Maria Isabel Bueso, whose lower body is paralyzed, was 7 years old when she came to the United States from Guatemala at the invitation of doctors who performed clinical trials for treatment of rare genetic diseases. As a result, the Management on sanitary inspection behind quality of foodstuff and medicines (FDA) approved medication that has increased the life expectancy of Mary for more than a decade, although the doctors were confident that she would not live to adolescence.

She is now 24 and each week she held a six-hour procedure at the University of California, San Francisco Benioff Children’s Hospital in Oakland, which support her life.

But very soon everything can change. Maria and her mother, Carla Bueso, afraid of being deported and they lose vital treatment.

«There is no plan B,» said mother Mary, noting that the treatment in Guatemala are unavailable. — I can’t even think about the possibility that this is not fixable. We’re talking about who needs this treatment to live.»

In August Marie and other patients said their program with which they were in the US ends, and they have 33 days to leave the country.

News SMI2

The policy change is the latest steps the administration trump the repeal or amendment of the procedures that allowed some immigrants to remain in the U.S. for humanitarian reasons. In addition to those who had serious health problems, they have included victims of crimes who have helped law enforcement agencies to investigate and care for sick children or relatives.

Maria Isabel Bueso has been a friend of mine for several years, battling a rare genetic disorder. Thanks to the actions…

Geplaatst door Assemblymember Marc Levine op Woensdag 4 september 2019

«I felt very scared and shocked,’ said Maria. — The treatment I get, saves my life.»

After the New York Times highlighted her case, the administration trump has announced that it will reconsider its decision. The final decision was still pending.